For health care professionals, we check the validity of the information provided against their registration board.
For example, many health care professionals will be registered with AHPRA, or some allied health professionals will be registered with a self-regulating board.
The check of AHPRA or a self-regulating board will occur to confirm only that registration is current, to the conditions that AHPRA or a self-regulating board set for registration.
This could include listings whereby a health practitioner continues to be registered, however has existing conditions of practice, or have had previous audits in the past. AHPRA, however, does not explicitly state health care professionals' knowledge about Childhood Heart Disease.
We know that some health care professionals will possess this, if they are, for example, paediatric cardiologists.
It remains the responsibility for the individual and/or their carer(s) to determine whether the health care professional may provide benefit to them, and they are satisfied by the terms in which they are registered with their relevant professional body, and their knowledge of Childhood Heart Disease (CHD)
For further details, visit https://www.ahpra.gov.au/, or contact the HeartKids helpline on 1800 432 785 for information regarding registered health professionals.
For organisations, we check the validity of the information provided against publicly listed information, such as business registrations, as well as any additional accreditations or boards that the organisation may be associated with.
We then conduct secondary checks of the organisation online, to confirm pertinent contact information, and query whether any concerns have been raised re: the validity of the business through online reports.
Each listing is verified using the details provided; HeartKids makes every effort to verify these claims.
It remains the responsibility of the individual and/or their carer(s) to determine if the organisation listed is a suitable choice, and a registered or authorised organisation who is CHD knowledgeable and suited to the individual’s needs.
For support networks, we have so many different varieties of peer support and organisations listed.
For charities we check the details listed from their website against the Australian Charities and Not-For-Profits Commission register, to ensure details are up to date and adhering to the regulations established by the Australian Government.
Government initiatives are cross-checked from their website, and to the individual state or federal listing to ensure its validity.
For online offerings such as private Facebook groups, we acknowledge that these will be subject to individual group and Facebook user guidelines. We are unable to confirm the level of support or services offered through some of these platforms (particularly private Facebook groups) and encourage users to exercise caution when interacting with others in these spaces.
For online offerings through private Facebook groups or online forums, it is unlikely that any significant personal details or banking information needs to be provided to join.
We encourage all users of these platforms to familiarise themselves with the ACCC Scamwatch webpage, and be cautious of sharing details that may be used for financial or personal benefit.
It remains the responsibility of the individual and/or their carer(s) to determine if these private groups are suitable for use, and acting in good faith of supporting our community.